Tuesday, December 14, 2010

Elbows and Surgery

We have a mom who is looking for families that have any experience with synovitis surgery in the elbow. Please share your experiences.

My son had elbow surgery in March do to arthritis and to remove a piece of matter in the joint. This elbow had been a target joint for him and became painful for him. He would experience times where the elbow would "lock up". I know he is happy that he had the surgery. The pain after surgery was so much less than the pain he had been dealing with every day. We were very pleased with his recovery.

I encourage you to talk to your HTC. They are a wonderful resource for you!


Monday, December 13, 2010

Proud Momma Moment!

Wow, Myrtle Beach, SC was beautiful on Friday Dec. 10th which was the opening of our SC Hemophilia Chapters annual Christmas Education Symposium. We had some fabulous speakers and break out sessions. My son looks forward to this event every year. He gets to spend a weekend with other children who have the same disorder and it gives him a chance to form life time relationships with those children. At this event, we were offered a chance to attend a new summer camp here in SC this year. The closest camp to us with a bleeding disorders week is 4 hours away. I think all the kids are getting very excited to have the opportunity to spend another week together. And I think my son finally got what I have been telling him since he was born......As I was hovering over him and his activities at the pool he told me "Mom, this is the way the Good Lord made me and I have to learn to deal with it. Let me be with my buddies and have some fun!" I had to back off....let go (which about killed me) and he had the time of his life, knew his limits and got to feel normal. It was a proud Momma moment.
Happy Holidays to Everyone! God bless. Suzanne

Sunday, December 12, 2010

Dayton Ohio GIG

It was a pleasure to meet some wonderful parents of children with blood disorders. We had to come out in the cold but it was worth it. We had dinner with a couple of speakers and then off to the Dayton Dragons Basketball game. We were all able to set together at the game and have a good time. It's always nice to get together with others who understand what you're going through. I look forward to seeing you again.