I'm sure all of you feel the way I do, but days go by and things are all good and then boom! Your child has a bleed that puts them down for a week and sometimes two or possibly three weeks. Those are the times I want to break down and cry. I usually don't because I have to stay strong and hold everything together. That's all right with me because I would do anything for my children. I just hurt to see them hurt. And then I know the doctors say that they will live a normal life, but the reality is life isn't totally normal. It's manageable and I thank God for that. It could be a lot worse. As I need encouraged sometimes all of us do. Stay strong and have someone to talk to. Be there for your children and love them a lot.