JNC Dallas

Today is the day!!! I am in Dallas with 95 kids with a bleeding disorder who will compete today in Baseball and Golf!! Let me know if you or your child is here!! Lori

Junior National Championship ~ Dallas

I am getting so excited to see all the families at the 2012 Junior National Championship in Dallas the weekend of September 21! These events warm my heart. I love seeing all the kids and parents interact. They are finally in a situation where having a bleeding disorder is the norm! Let me know if you and your family will be attending the JNC in Dallas! Lori

Back To School

It is hard to believe it is that time of year again. Time to get the kids ready for back to school. When you have kids with a bleeding disorder there are a few more things that need to be done. Here a just a few ideas of what you may need to do to prepare for the new school year: *Create or update a 504 plan at the school. *Get the medication forms signed my your doctor to have Factor at school. *Set up a time to go in and talk to your childs teacher and the supporting staff. *Meet with your childs Guidance Counselor to see what information they may need. *Put together a kit for the health office with everything needed for a couple infusions. These are just a few ideas. There are many many more. Please share your tips for back to school. Lori

Moms

I hope you all had avery nice Mother's Day! I came across something that I wanted to share with you. Let me know what you think. Lori SPECIAL NEEDS MOMS A LOOK INSIDE You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We’ve made it through the days We thought we’d never make it through. We’ve even impressed our own selves with all that we can do. We’ve gained patience beyond measure, Love we never dreamed of giving. We worry about the future But know this “special” life’s worth living. We have bad days and hurt sometimes, But we hold our heads up high. We feel joy and pride and thankfulness more often than we cry. For our kids, we aren’t just supermoms. No, we do so much more. We are cheerleaders, nurses and therapists Who don’t walk out the door. We handle rude remarks and unkind stares With dignity and grace. Even though the pain they bring cannot be erased. Therapies and treatment routes are a lot for us to digest. We don’t know what the future holds but give our kids our best. None of us can be replaced, So we don’t get many breaks. It wears us out, but to help our kids, We’ll do whatever it takes. We are selfless, not by choice, you see. Our kids just have more needs. We’re not out to change the world, But want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them we just see kids. We hope you’ll do the same. April Vernon