Merry Christmas to everyone

Spam - on comments

I am trying to get this blocked, sorry about the inconvience of the spam. Thanks for participating on our blog site. I hope that everyone enjoyes each other and shares for everyone to have a better life

happy holidays

Happy Thanksgiving

I hope everyone enjoyed your families during this feastive day
Rhonda

Dreams and Set Backs

My two teenage sons bowl on their High School bowling team. On Sunday we were traveling about an hour and a half away for a big State Tournament. Needless to say they were both very excited! When Cody my 15 year old woke up Sunday morning he was not able to straighten his right arm. He has had some issues with this elbow more than likely from past bleeds. He was certain it was not a bleed but he did give himself factor. I'm sure you can imagine how difficult it is to bowl when you can not straighten your arm. Cody put forth his best effort and really bowled quiet well. His team was supportive of him and his efforts! I watch for just about 5 hours as my son struggled to bowl. I was filled with mixed emotions! Part of me was so proud of him that he continued with his passion yet another part of me wanted to run down and get him and take him home.

We all have times when we have to have faith in our kids and let them make the best choices for themselves. It has always been important to me to make sure my kids understand their hemophilia and their limitations. To understand when to take a break and when to push forward. Sometimes that line is not so clear.

I will leave you with a line I always say to my kids when they leave the house. It applies to so much more than their hemophilia!

Make good choices!

Mysteries

Last week we discovered that my 15 year old had a very low hemoglobin and the size of his red blood cells was very small as well. Our hemotologist said that since he has not had any prolonged bleeds that we are aware of we need to investigate. He has had a CT scan of his abdomen which was normal. Today we are seeing a GI doctor to dig a bit deeper. The thought is that he has some slow bleeding .... maybe in his GI....that is just not enough to give any signs but enough that over time has lowered his hemoglobin.

The "battle of the hemoglobin" is one I'm sure we have all dealt with. If you feel comfortable, please share your stories. Maybe something someone else has been through will give us ideas of what to look for in my son.

Have a fantastic day!

Lori

Annual NHF Meeting Sanfranciso, Ca October 2009

Hi everyone,

I am so excited that this month is NHF, we meet so many people, make freinds for life and learn about hemophilia. I hope to see some of you there, have a safe trip

National Hemophilia Foundation Annual Meeting

San Francisco California October 2009
For those of you that are attending NFH make sure you stop by and visit the CSL Booth 100
See all of you in San Francisco
Rhonda

good morning golfers and baseball players

it is beautifull here in Roseville California today at the JNC
Good Luck everyone one

JNC SACRAMENTO CALIFORNIA

Welcome everyone that is attending the JNC in Sacramento, Ca on Sunday
It is going to be a gorgeous day with lots of fun, friends and excitement

broken Ankle in 4 places

Good Morning everyone, today is a big day at our house, we are going to the doctor and get the official word that my son can walk on his ankle again He broke it July 22nd, had surgery and spend the summer in a boot, wheelchair and crutches. I am just so thankful that we are able to suffer these minor problems in life as they are Minor. With modern technology one being factor he only spend one day in the hospital and they feel that there will not be any permanent damage
thanks for all your prayers

Nose bleeds

Hello, I'm just curious to see how many other moms out there deal with alot of nose bleeds with their children that have hemophilia. My children have been in school 5 weeks already because they're in year round school. The first week of school I was called three times for a nose bleed. My son has had them since he was a baby. It seems they don't bleed real heavy all the time. Which is good, but it seems his nose is like a faucet. It's like you turn it on and then off. It bleeds for no reason. You all know that we go through so many things with our children, so this isn't really a big deal, but I feel bad for him in school when this happens. I'ts always good to hear what other mothers experience. Have a blessed day, because everyday is a blessing.

Hemophilia of Iowa

Tomorrow morning I will be headed to Des Moines, Iowa for their annual meeting. I am looking forward to seeing old friends and meeting new ones! If you are attending this meeting, please stop by the CSL Behring booth and say HI!

Annual meetings are such a great way to interact with other families that deal with the same thing as you....bleeding disorders. There is always a wealth of information there! I do hope you all take advatage of your local annual meeting. Don't for get the NHF annual meeting in San Fransico the end of October!

Safe travels to all!
Lori

Good Morning Rainy Salt Lake

Good Morning everyone, I am in Salt Lake today at the CSL Behring Junior National Championship, I am excited to meet all these Moms and families
Bring your rain coat and I will see you there

Salt Lake JNC

I will be at the Salt lake JNC Aug 15th
hope to see you there

Kids will be Kids

Good Morning everyone,
My son wanted to take a last dip in the river Wednesday Night before dinner and packing for Vacation. We live close to the river, he jumped in his normal spot that him and his cousins call thier own and something happened, he hit a big rock. Some one had pushed a big rock into the jumping spot and he hit it with his left foot. Breaking it in 4 places at the ankle, Well guess what that ment, a trip to the ER exrays and 5 hours of wait time. they said we could still go on Vacation, but we were going to fly in 4 hours for 6 hours plus to a Ranch of all fun outdoor things and he was in a boot, crutches and wheelchair not mention the Meds involved. the trip has been postponed and we are having surgery next week, in the mean time we are infusing twice a day and trying to keep a 15 year old some what at bay, he is still very active, he went to the National Motor Cross Races, went to the river, went shopping and out to dinner. I have to admire my Son he is taking this small set back with a great attitude, I will keep you posted on the out come

National Hemophilia Foundation Annual Meeting

We just signed up for NHF's annual meeting in October
It will be held in San Fransciso, Ca
If you are planning to go visit the website of NHF and there is information and registration info available

I hope to see you there

Camp

How many of you are sending your child to a bleeding disorder camp? We are packing up today to head to the northern woods of Minnesota. My boys will be attending hemophilia camp at Courage North in a week. We like to go up early with our RV and spend some time with the boys before hand.

I would love to hear from those of who have kids going to camp, already been to camp, or deciding about camp!

Hope you all are enjoying the summer!
Lori

We are Family

Hello to you all. It seems we all have busy schedules and all have something in common. Everyday we have a challenge, but we survive. We all need eachother and having this blog site is the perfect thing. This isn't for us to write stories, but for us to communicate and just ask questions. It's a good feeling to talk to someone that understands what you're going through. Let's all use this website to do this. I'm sure there's days we can use some encouragement. Remember, everyday is a new day and we will survive, we are family.
Hope to hear from you,
DeAnn

School is out for most

Yea School is out for the summer
This is the time of year your kids go with friends and family with out you, make sure they have thier medical alert current and take thier factor just in case

also, this is the time of year that you work out with the school all the details for Individual learning programs and or federal forms

enjoy

Happy Memorial Day!

I hope everyone is enjoying this day! I know many are participating in outdoor activities....games, cookouts, boating, camping...the list goes on. Remember to have fun....let your kids be kids....make sure they have been infused so all the fun does not come to a hault by a bleed! However, even with good planning bleeds do happen. Its ok! That is just one way we are all connected!

Here is to a hospital free day!